| Issues in Conducting Quality Research |
| Health care providers are increasingly
directing their attention to how illness and its treatment impact on the
overall quality of life (QOL) of their patients, not only on patient
mortality and morbidity. |
QOL assessments are now frequently incorporated
into research and clinical trials on drugs, devices, nursing systems or
therapeutic interventions. |
Nurses must be prepared to conduct studies that
evaluate quality or test the impact of specific nursing interventions on
quality of life. |
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| How to measure quality? |
Should the research and methods be
quantitative, qualitative (possibly grounded theory interviews) or a
combination of both? |
Factors used to decide:
- Privacy available for interviewing or observation of nursing care
quality
- Personnel resources
- Data type needed to answer your research questions or address the
hypotheses
- Ease of access issues (e.g. severity of illness, complexity of health
promotion or privacy of information)
- Patients at different stages of illness
- Educational level and wording if self-completed questionnaires
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| If a quantitative approach is chosen, which
instrument to use? |
Should generic, general, overall quality or
health related quality or specific quality instruments for a certain illness
or interventions be used? |
Pros and cons of these:
- Generic instruments allow comparability of results across different
types of patients or normative groups
- General or well being measures have a broader array of quality
dimensions
- Disease- or intervention-specific instruments provide more detailed
information
- Limited in types of dimensions assessed
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| Which dimensions of quality to measure? |
Multiple versus single dimensions of quality
have been studied extensively by researchers, ethicists, sociologists,
policy-makers and others. Which dimensions best fit your study questions? |
Considerations include:
- Assess only those dimensions directly affected by the nursing
care under study such as functional capacity or physiologic outcomes
- Effects of treatment (e.g. nausea/vomiting in chemotherapy)
- Approach broader, recognizing that health care system factors can
impact even economic aspects of quality
- Other domains of the patient's life (e.g. work, leisure activities,
relationships, etc.)
- Not miss crucial events or important data points
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| How often and when should quality
assessments be done? |
Longitudinal studies, time-sersis following
intervention designs and one time data collection (inability to obtain
pre-intervention measures) and the method you elect to use to obtain quality
data all influence the numbers of data points. How often and when would you
ideally measure quality? |
- Based on knowledge of the illness trajectory and the treatment
- Signposts of intervention success or failure
- Repeated baseline measures prior to intervention
- Predicted withdrawal from study or other missing data
- Completion of therapy or intervention
- Repeated measures over the course of recovery to ascertain which
aspects of QOL intervention impacts
- Significance of the problem under study
- Length untoward side effects might persist
- Data analysis issues
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| Who should be target of a data collection
and what level of data analysis? |
QOL and quality of care data is needed from
individual points of view, populations or group of persons, and government
or managed care agencies. Determine if your proposal can include
interventions is cost-benefit and/or interdisciplinary findings relative to
quality? |
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| Who should your data be reported to?
Reports are always sent to the funding agency, research colleagues, clinical
setting personnel, interdisciplinary audiences, professional and lay
journals. Typically, subjects studied are told a summary will be made
available for them. |
It's often said "your study is not really
research until your findings are appropriately disseminated or published."
What would a summary of your study contain (e.g. scientific abstract,
layman's language summary of findings only, description of clinical
significance) for those listed in the next column? |
Select one and describe:
- Patient
- Family
- Health Care Professional
- Health Care Agency
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